A detailed blog about my experiences with Pulmonary Hypertension (ph). Details about procedures, opinions, outlooks, options, and what it is like to go through this process.
Friday, October 16, 2009
Getting Sick?
I think I am starting to get sick. Not sure. I was talking to Dan, he isn't feeling well, and he is feeling the same as me. We both feel like our blood sugars are low, and have a headache, and body aches. I am also having difficulty breathing. So, we will see.
Thursday, October 15, 2009
Been a while.
Sorry again! I have been pretty lazy the last few days.
Xena and her family came, as you all know, and had her birthday party here with me! It was a blast!! Tiring!! But a blast! We went to Bananas for it. I will develop the pictures soon and get them posted up here.
Otherwise not a lot to say. I am working on getting new doctors. not necessarily to replace the old ones.
I haven't been sleeping well. It is taking me forever to fall asleep, and I wake up all the time! So I have been napping!
Xena and her family came, as you all know, and had her birthday party here with me! It was a blast!! Tiring!! But a blast! We went to Bananas for it. I will develop the pictures soon and get them posted up here.
Otherwise not a lot to say. I am working on getting new doctors. not necessarily to replace the old ones.
I haven't been sleeping well. It is taking me forever to fall asleep, and I wake up all the time! So I have been napping!
Saturday, October 10, 2009
Nothing.
That is what has been going on with me medically. I haven't heard from anyone! Ne calls, no packages, nothing.
The Bunces are in town!! For Xena's birthday! She wanted to spend her birthday with me (*tear*) and we are going to Bananas! They got in Friday evening, and I went to dinner with them. After words I went to the bingo hall to play with mom, Juddah and Cass, and Laura and her mom! Didn't win.
Today we went to the mall for halloween stuff, went to lunch, swam, and did the Dinosaur museum!! Tomorrow looks to include the desert for RC car racing, eating, cake baking, the butterfly museum, and maybe more.
I am tired now, so I will write again. Maybe something (good) will happen with my health in the meantime.
The Bunces are in town!! For Xena's birthday! She wanted to spend her birthday with me (*tear*) and we are going to Bananas! They got in Friday evening, and I went to dinner with them. After words I went to the bingo hall to play with mom, Juddah and Cass, and Laura and her mom! Didn't win.
Today we went to the mall for halloween stuff, went to lunch, swam, and did the Dinosaur museum!! Tomorrow looks to include the desert for RC car racing, eating, cake baking, the butterfly museum, and maybe more.
I am tired now, so I will write again. Maybe something (good) will happen with my health in the meantime.
Monday, October 5, 2009
New Nurse
I have to remember that I hate change. When it comes to the big things, I don't want it. I can't decide if I am irritated with my new nurse because of anything she said, or if it is just because she isn't Sondra. I will let you know. I hope that it will be ok. She did tell me that I am not supposed to sleep on the right side. Since the right side of my heart is enlarged, it is uncomfortable to the point of pain, and possible pulmonary problems! So I guess that is good. She also told me that they are going to try different dressings to see if that is the cause of irritation. It is easier than changing the tubing. But she said that if that didn't work, that there are different kinds of tubing that we can try. So I have some hope. Although I am skeptical. I am afraid that we are gong to think things are going well, just to have more irritation. I told her that when you change things, it can take a while to show any irritation. It took 6 months for this to start. So we will have no answers for quite a while. She also told me I am not to put any other tape on my skin, so I have to change the way I do my dressing. And she is checking on my referal to the rheumatologist there, making an appointment for when I will be there in Nov. That will be nice.
Subscribe to:
Comments (Atom)