So it has been a while. A LONG while. My bad!
A lot has happened. Mom posted that we went to Denver to have a new catheter placed. This one doesn't have the silver cuff on it. The manufacturer said that I should not be allergic to the silver cuff... but I really think that was at least part of the issue. After having this new one in for a few weeks, I am totally sure that is the cast. It already feels so much better than the last one!!
My other grandma, Eleanor Bower, passed away a few weeks ago also. It was sad, mostly because she seemed to suffer so much that last week. I am just so glad she is not suffering. So of course my dad came into town for that. It was great to see him! Just wish the circumstances were better.
Mom has big news for everyone... so make sure you call her and ask her about it! I would tell you, but I want her to!
I will be starting as a mentor for the new PHA patient and caregivers Mentor Program! It will start in the middle of September! Should be exciting, it is for new patients to have someone to email questions to and just talk to. I have also finished 2 articles for the upcoming Pathlights newsletter. I will post the link when it is available, but you will not be able to read it online until next year. HOWEVER... you can donate $15 to become a PHA member and you will receive the newsletter in print... IF you do it soon. It will be published in October.
I have been house sitting again, and I am doing ok. After my grandma died I started with a new lupus flare, that has yet to leave. I called my doctor in Denver and he got me started n low dose prednisone again, and it is helping. My heart is feeling more stable, and the pain isn't so bad. When it is time for the next dose, I am very stiff again. :( And my fibro is very painful right now. Otherwise I am good! I will go home Thursday, and I am looking forward to it! I love house sitting... but it is always good to go home! :)
I think that is enough for now, I will try to be more diligent and write more frequently. I will start school on the 23rd, so no promises!! Hahaha! Wish me luck!
