I think a lot has changed since I last posted, and through facebook and what not you have all pretty much been updated... but I should update here too!
In my last post I had just gotten a new Hickman without silver. Well that lasted a long time!! I just had an infection (for sure this time an infection. It grew stuff) almost two months ago. Seriously much longer!! I went from May of this year to November of this year without using my oxygen! I graduated from Colorado Mesa University with an AA! :) Life has been good! Pat is still loving me and we are preparing for him to go to Grad school in 3 semesters and I will be joining him. Mom is well, and so is the rest of the family. We lost Princess, and Mom and Dan separated. That is part of life, I hope they can all be happier now.
I have started a new drug for my lupus, Benlysta. It is an IV infusion I get once a month. I think it is working! This week I start my dose of prednisone at 10 mg!! I had to get a power port for the infusion, as my veins have become increasingly difficult to find for IV. I have used it twice, once for an infusion, and once for a procedure. I have been officially diagnosed as having Celiac Disease, and colitis. Now to figure out where the colitis is coming from!
Last week I went for a check up and the doctors found water on my heart again. For a few weeks I had been complaining of S.O.B. (shortness of breath, not son of a bitch), so this explained that. We upped lasix for a few days and I am feeling better! Lets hope we caught this early!
And last, but not least, I have started going to acupuncture! Yay! I really like it! I think it has really helped with the back pain I have had for the last few years! (Oh yeah, I learned that I have osteoporosis in my hips)
School has gone well this semester, but I am in a little over my head. I have had to drop one of my three classes. I will pick it up again in a few semesters. I had hoped to do Tai-Chi next semester, but I feel with the recent heart activity it is best not to push. I am registered for 2 classes, and I think I am good with that. Winter is (almost) here, and I am hoping that everything is under control.
