Leaving tomorrow.

Well, I am mostly packed for this trip. And it is so weird to pack to go to the hospital. You don't take clothes, food, or essentials like that... you take toys! And slippers. I have books, comics, origami, knitting, coloring, reading, and my DS. I have my snacks for the trip, and pajamas for the hotel the night before. Now I have to find a way to go to sleep. Oh yes, Mom tells me we are going to Blackhawk on the way!! I have never been there! Maybe I can win some money!!

Would you like me to tell you what I have learned about the cost of this medication? I knew you did. In 2004, and only the medicine (that means not the hospital, the implant, the pump, supplies, or the nurse, no infections, no emergencies) costs between $10,000 and $20,000 depending on the dose EACH MONTH!!!!! OMG!

My nurse, Carrie Z, sent me a copy of the 3rd Edition Pulmonary Hypertension: A Patient's Survival Guide. It is a wonderful book! If you have $20 laying around and you are interested in this, medicine in general, or know anyone with this disease... I highly recommend reading this book. The amount of information is astounding!

And I have been so blessed. I mean it. I have found out that I touch people way more than I thought I did. So many people are pulling and praying, thinking, hoping, and loving me and for me. I have received a prayer quilt from my uncle and his church in New Mexico. Maggie Childers made me a prayer shawl, and all of the people at my mom's work prayed in it, and some past teachers and such too. It was taken to my church, Covenant Pres, where my pastor blessed it and myself and asked for all kinds of good stuff. My aunt and uncle from South Dakota gave me numerous things to stay comfy and warm, and a beautiful rosary. I have never had one, so that is a first! I have a picture of my sister and her family to set by me, and an angel and a rock of courage from Carson's parents. I think I am forgetting something, but I am not sure! I will be surrounded by those that I love, and who love me. So a big, BIG thank you to all who are out there praying, and loving, caring, thinking, and pulling for me, and thank you for all the momentos.

The weather forcast says that it is supposed to be a little snowy towards Denver... duh, it's winter. We are expecting to be there until Friday at the earliest. Mom said she will be taking Kissy's digital camera, so we should be able to post pictures up here. But at Kristine's request.. no "gross" ones.