Saturday, March 28, 2009

I'm Retarded!

So I just spent like the last week forcing myself to read this boring book, all because I wanted to read this classic. Come to find out it was just the intro by the author about his boring life!! Ugh! over 20% of The Scarlett Letter is the intro by the author! Needless to say, the actual book is better than his into. Who cares about his boring life in The Common House!?! Not me!

Well, I went up again the day before yesterday ( so two days in a row). I am now at 22ng. And I am concerned. I have read all of this info on this drug. There are no studies showing the effects/effectiveness of Remodulin in doses above 46ng. The average life given by this drug is 6-8 years, but I am already halfway to 46. So I am wondering... am I just not to the strength I need? Am I responding well, but needing more? Is it going to give me less of an extension on my life? I am not sure. I will have to be asking the doctor next time I talk to him, or Sondra. I am ok with any of these. Even if it doesn't give me as long as others get, I am still so much better than I was before. I am almost normal... even if just for a little while.

Today is my grandma's birthday (69th I hear). We are going out to lunch to celebrate with her! I am excited! And my hair is getting long enouigh to do stuff with. I have been putting it in little piggy tails! I look like a little girl! And today I put it back in frenchbraids. Cute! I am back to normal after my digression last week. And I think I am mostly over this cold. Thank you to all those who have expressed their desire to see me, but have stayed away because of illness! I appreciate it! I hope you feel better so I can see you!!

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