So it has been a while! Not a whole lot has been going on. I have been doing physical therapy twice a week, and I love it!! I had to switch my pharmacy for Remodulin, and that has gone well. Winter is being a baby and continues to throw little fits, postponing Spring. And my room is a mess, I need to clean it!
A few days ago, two wonderful boys (friends of my brother) had to make the hardest decision ever. Their mom had rapidly progressing MS and hadn't been well. Apparently she had a bladder infection that went to her blood and she was admitted to the hospital. She progressed from bad to worse, and they had to decide if they should take her off life support. She was divorced, her mother passed away 2 weeks ago, and her oldest son is 21. I feel so bad for these two! They shouldn't have to make that decision ever, let alone at 17 and 21!! So just a reminder.. I know you don't want to talk about it.. please write your choices down. Community has a booklet if you need help with Advance Directives. It is so important! If something happens, you can still tell others what your wishes are.
Mom has been depressed lately. She talked a little about it, but just a little. She said that at this time last year, she had been spending a lot of time with her mom and dad, and she is really missing her mom. I told her that maybe that is why I got sick, so she could spend that time close to them. She was very concerned (grandma was) about me, so her and grandpa were very close. She is also missing Tori and Bella. She spends time with Eme, so that helps.
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