Again it has been a long time since I posted, and I am very sorry. Things have just been status quo, until recently! I am still taking classes at CMU and am loving it! Spring is here and I have started gardening. Of course I never do anything the easy way, so my garden consists of many things, including my new lemon tree!
My last appointment with my PH specialist went really well. He said that my heart is almost completely normal! The size is normal and the output is almost there! He was so happy, and so were we. However there is a catch, as there always is with me. My lupus is in the process of changing and developing new symptoms. Yep. Totally active and not responsive. In other words... the chemo didn't work. So we are on to the next step, a drug my doctor has never worked with. Benlysta is a drug given by injection, and yep, I would be going to Denver every month. My next appointment with my Rheumatologist is at the end of April, and we will be setting things up then. This is the drug that was just approved by the FDA for lupus, and there are no long term studies on it. The side effects seem to be the same as the chemo I was on, except there is no increased risk for bladder cancer, and as far as I can tell I will not lose my hair.
I get to go to FLORIDA!!!! This year is the PHA's PH Conference and it is Orlando Florida! I applied for a scholarship and was awarded it. June 22-24. Tami is going with mom and I and is letting us use her condo! THANK YOU!!!!! I am really excited about this! I will keep you all up to date with how everything is going! I need to get a suitcase now! I got a swimming suit that fits...
Lastly... I get to graduate!!! May 12!
Oh, I guess that is not completely all... Visit my new blog Colorado Blueberry! All about my experiences gardening. I needed to keep track of what I am doing for the blueberries so I know what works and what doesn't, and thought... well hey! I might as well blog it! So maybe I can keep busy on both of the blogs! Wish me luck!
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