Lookin' Good

Things are looking good. Just had a visit from Dr. Badesch (the top dog), he said things are looking very good and training is going well. We will get to go home tomorrow!!
Yesterday was a great day for Anna, the Bunce's came to visit. The kids have gotten so big; Kiki is doing well, Xena is Anna in blonde hair, and Jamie is such a young man! It brightened Anna's day and lifted her spirits.

Training with Stephanie will continue today with emphasis on changing the dressing and hub and showering. The day's of bathing are over, Anna will be limited to showers from here on out. There is a water resistant dressing that she will be using along with...Press n Seal (developed here at the CU Med Center). Tami made some purchases for us yesterday that Anna has to have upon arrival at the house, thank you Tami very much!! The next purchase we have to make is a bath scale. I know, I said I would never own one, but Anna will have to weigh herself every morning; if her weight increases by 3-5 pounds in a day she has to go to the doctor (it means fluid retention).
It is a little scary to think of everything we now have to do with the pump and catheter, but truly amazing when you think of the support team we now have. There are less than 10,000 people nation wide who are on the medication Remodulin and only about 3 current patients here at CU Med Center. We will do an inservice with the EMT's when we get home to insure anyone who may respond to an emergency call for Anna is onboard with the procedures that need to be followed. The number one emergency treatment for her will be to NEVER STOP THE PUMP.
When you all visit our home you will note procedures you will have to follow prior to entering the front door. But, we will go over those later.
The sky in Denver is a beautiful clear blue, the view of the foothills is great, but the smog in the Fort Collins area is sad; glad we don't live there!
Have an awesome day, we will.