Fabulous!

So the trip to Denver was wonderful! Seeing Xena, Kiki, Jamie, Antoinette, and James was so perfect! I am glad to be home. Abby and her dad gave me a new bed!!! (Thanks so much!!!!) Today I have spent a lot of my time re-arranging my room and getting everything where I want it. I needed a break, so I got online! Haha!

My echo yesterday showed that the pressures were only slightly elevated, and the size is in the normal range! (now you can cry, jump for joy, or do whatever it is that you need to release that pent-up anxiety!) They said they are so pleased with my progress and that they were not expecting it to be this dramatic!

It took us forever to leave the hospital yesterday. We were there until 6pm. My nurse was concerned with how far the cuff of the catheter was sticking out of my chest, and a surgeon she grabbed said it needed to be replaced. My doctor said it was fine and had an X-ray to make sure. The X-ray said it was placed in the correct spot, so there was no need to replace it. The cuff that is out is the antibacterial barrier, and I have possibly figured everything out! I remember being told that silver is used in the cuff because it is antimicrobial, but I am allergic to silver! SO!!! This means that if it is silver, my body has been pushing the cuff out, and I have been having rashes and itching and redness because of this reaction! My nurse is looking into what it is made of, and I will be doing the same.

Also, I need to research the different congenital heart defects, because the doctor suspects that is PART of the PH. If I stay stable for the next 2 to 3 years, they would plan on doing surgery to fix this. This means I am doing well enough that they are comfortable enough to do a heart surgery in a few years! (this is a good thing) It would be a minor invasive surgery, in that they do it microscopically through a series of right heart catheters.

So there was some fantastic news this week, along with some that was not good or bad. Yay!!