My bad!

I am so sorry! I thought I had blogged since that last one, but I didn't!!

So, the sinus infection isn't REALLY a sinus infection, but it is close. It is still here, and I am still trying to get rid of it. The ENT dr thought that it is being caused by my sinuses being inflamed, so we are trying to remedy that. ... we are STILL working on it.

I am in Denver. Colo Sp. to be exact! Oh am I having a blast!! I think we may be going bowling today! More on this subject to come another day.

At the Rheumatologist yesterday, we found out that I have a very aggressive form of lupus. We are still needing to find out what "agressive" means. Is it like an aggressive MS (rapidly progressing)? We also learned that less than 10% of all lupus patients have this form. AND I am headed towards Scleroderma. That doesn't really change things, just gives the direction. Now it is time to learn more about that.

I have been asked by the PHA to write an article!! (OMG!! who thought I was a writer?!?) I had posted a question, about talking to others about this disease, and answering the questions children ask without lying and in a way they understand. So yay!! If this happens, I will post a link to my article! (Still in shock!)

Tomorrow I will visit my PH doctor and get an echo. I will let you know how that goes!

Oh yeah, I have found that my "alone time" is very vital to my demeanor. I get snippy and childish if I am surrounded by people for too long, go figure.