I am so done with close calls! This morning I had to mix my medicine. I don't look at my pump. It stays in my bag, I only look when I change the cassette or when I hear it beep. When I went to switch the pumps ( I have two) the one I was hooked up to was off!! Yah, you read that correctly, off! I have no idea how long, nor how. All I do know is that I woke up at 930am, took a shower around 10am, and started mixing my medicine around 1030am. I felt ok in the shower, but just afterwords I was noticing that I was really short of breath, and a little light headed. Before you worry too much... No, it isn't supposed to happen, yes there are safeguards that should prevent that, no I haven't called the company yet, and yes I am doing it tomorrow. The nurse I need to talk to is M-F type, and I need to order my next shipment.
As for the wierd things I feel... I was sick again Saturday but not today. I will keep track of that. My nurse in Denver is back on duty Tuesday and I will call and talk to her. And I will let her know about the pump too. My water retention is doing ok. I am again retaining more than I am putting out, you can see it in my face and belly. I start taking just 20mg of prednisone each day tomorrow!! I am not hurting nearly as bad as I thought I would be coming down!
Yesterday I spent the day with my grandpa. It was great! We went to a plant sale, had lunch, went to get ice cream, and just hung out and talked. I loved it. I think it was as good for me as it was for him. He said he had a rough morning that morning and we talked and both of us cried.
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