I saw my rheumy today, and my lupus is doing great he said. That is a good thing!! Both of my doctors here are not concerned with my water retention and say that it is related to the prednisone. Dr Faber said that once I get down to 10mg or less each day that I will notice a significant decrease in my retention. I just wish it would go away!! I hate looking like a cherub! I try not to be vain, but I am. Of all of my possible lupus symptoms, it was the ones you could see on the skin that made me scared and cry. The physical I can handle. Does that make me a bad person? I would rather hurt than look bad?
Dr Bull from Denver wants to see me before the appointment I have scheduled, June 9th. So he set it up where I go in on May 13 in the afternoon. Graduation is May 12, so Mom and I will be leaving May 13. We also upped my medicine today, so I am at 34ng. I got my shipment of medicine in yesterday, we upped the concentration of the medicine itself. So I used to use a vial of Remodulin that was 1mg/ml, and now I am using a vial that is 2.5mg/ml. That changes all of my measurments, but I use fewer bottles each month.
Niki and her girls leave to go home tomorrow. We are all sad to see them go. We will miss them! Things have calmed down a bit, we are more adjusted. But it will be nice to have things go back to "normal". Some things will never be the same though.
About a month ago, I found out that my cousin Eric has cancer. They are not really sure what kind he has, but it is very aggressive. It is throughout his entire body, on every organ, and they are working on it. He is a minister of a church in Delta, and has a great support system. Just thought I should mention that. My Dad is going to be coming to town again this month, around Memorial Weekend! That will be nice too!
And finally, I saw State of Play, and I must recommend you see it! I thought it was great! Ryan didn't like it. Just kidding Ryan. He said it wasn't his kind of movie, but it was good. Well, I will sign off for now, gonna take advantage of the quiet and take a nap!
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